Spina bifida can be diagnosed during pregnancy or after birth. Spina bifida can cause health problems for your baby, such as fluid on the brain, paralysis (not being able to move parts of the body) and learning and developmental disabilities.
How does spina bifida affect physical activity?
Mobility and Physical Activity Those with spina bifida lower on the spine (near the hips) might have more use of their legs and use crutches, braces, or walkers, or they might be able to walk without these devices.
How does spina bifida affect a child’s emotional development?
As a child with spina bifida progresses from early childhood through adolescence, increasing difficulties with self-esteem, confidence, body image, depression, social skills, isolation, exclusion, and dating/ relationships are not uncommon.
What body systems are affected by spina bifida?
Spina bifida can happen anywhere along the spine if the neural tube does not close all the way. When the neural tube doesn’t close all the way, the backbone that protects the spinal cord doesn’t form and close as it should. This often results in damage to the spinal cord and nerves.
Is spina bifida a developmental disability?
Examples of developmental disabilities include autism, brain injury, cerebral palsy, Down syndrome, fetal alcohol syndrome, intellectual disabilities, Prader-Willi syndrome, spina bifida, and Williams syndrome.
What are the long term effects of spina bifida?
Individuals born with spina bifida (myelomeningocele) face serious physical and social consequences, including paralysis, insensate skin, and potential social ostracism associated with loss of bowel and bladder control. Over time, muscle paralysis can produce contractures, joint dislocations, and spinal deformity.
How does spina bifida affect behavior?
Many people with spina bifida find it very difficult to manage change, which can cause a lot of anxiety; things change and this is often outside our control. Sometimes people become anxious about trying new things, or try to control all aspects of their life with rituals or routines.
Can a child with spina bifida play sports?
Given that some children with Spina Bifida will be limited in their physical function, what activities should they be exposed to, and when? Typically, kids start playing baseball, soccer and other team sports at age 4-5 years.
How does spina bifida affect mental health?
Low self-esteem is associated with depression and is one reason why people with Spina Bifida are more likely to be depressed. Other risk factors include decreased social support and isolation.
How does spina bifida affect the brain?
Many babies born with spina bifida get hydrocephalus (often called water on the brain). This means that there is extra fluid in and around the brain. The extra fluid can cause the spaces in the brain, called ventricles, to become too large and the head can swell.
What are the challenges of spina bifida?
- Learning to take care of their own health needs.
- Going to school.
- Finding and using transportation.
- Living outside their parents’ home.
- Developing healthy relationships.
Does spina bifida cause mental retardation?
Children with spina bifida meningocele typically can be treated without surgery. However, they may develop complications, such as bladder problems and hydrocephalus, or excessive fluid in the brain. If untreated, it may cause movement disorders or mental retardation.
Do people with spina bifida have normal intelligence?
Most children with spina bifida have normal intelligence, but some may have learning difficulties.
What famous person has spina bifida?
- Hank Williams, Sr.
- Frida Kahlo – Artist.
- Jean Driscoll — Wheelchair Racer & Olympian.
- Jay Bradford Fowler — Poet.
- Jim LeBrecht – Sound Designer.
- Rene Kirby – Actor.
- Van Smith – Theatrical Make-Up Artist.
- Robert Hensel – Poet.
Does spina bifida affect the heart?
The baby may also have other problems related to spina bifida that include the following: hydrocephalus (increased fluid and pressure in the head area; occurs in about 80 to 90 percent of cases) heart problems.
What are the 5 developmental disabilities?
Examples of developmental disabilities include autism, behavior disorders, brain injury, cerebral palsy, Down syndrome, fetal alcohol syndrome, intellectual disability, and spina bifida.
What are the most common developmental disabilities?
Common Developmental Disabilities Among the most common are intellectual disability, autism spectrum disorder, Down syndrome, and cerebral palsy.
What are some developmental disabilities?
- Autism spectrum disorder.
- Cerebral palsy.
- Hearing loss.
- Intellectual disability.
- Learning disability.
- Vision impairment.
What is the life expectancy with spina bifida?
The prognosis for survival was strikingly poor in those with the most extensive neurological deficit. Only 17% (7/42) of those born with a high sensory level (above T11) survived to the mean age of 40 years, compared with 61% (23/38) of those with a low sensory level (below L3; p=0.001).
Can mild spina bifida cause problems later in life?
A spina bifida diagnosis occurs prenatally during an ultrasound, but since spina bifida occulta is mild and “hidden,” many cases of spina bifida occulta go undiagnosed or receive a diagnosis later in adulthood, as there are rarely symptoms from this condition.
Can a person with spina bifida live a normal life?
“Most do well in school, and many play in sports. Because of today’s medicine, about 90% of babies born with Spina Bifida now live to be adults, about 80% have normal intelligence and about 75% play sports and do other fun activities.”
Does spina bifida affect cognitive?
Until now, the cognitive impairments in spina bifida have often been attributed to the severity of the hydrocephalus and associated complications such as shunt revisions, infections or seizures. In spina bifida, however, hydrocephalus and ACM do not occur independently.
Can you play sports with spina bifida?
Most physical and sporting activities are fine for participation but contact sports such as football should be avoided. Children living with Spina Bifida do not have normal sensation. Burns and abrasions can occur easily from hot and/or rough surfaces eg. Slippery dip and sand.
What does spina bifida look like at birth?
Spina bifida is a type of birth defect called a neural tube defect. It can cause part of the spinal cord and areas around it to form outside of the body. Symptoms can include an area on the back that looks abnormal. This may be a small hairy patch, dimple, or birthmark, or a pouch-like bulge (sac).
Is spina bifida considered special needs?
Most children with Spina Bifida (SB) should be eligible for special education within the public education system. Eligibility is determined by evidence that there is a disabling condition that adversely affects the education of the student in the regular education classroom.